July,
2014-
Juvenile arthritis is one of the most common chronic illnesses
affecting children, yet it often goes undetected or misdiagnosed when
symptoms first appear. This July, Juvenile Arthritis Awareness Month,
the Arthritis Foundation is focusing on increasing awareness of early
signs and symptoms of juvenile arthritis and resources available for
families affected by the disease.
Often
a child complaining of achy joints is diagnosed as having “growing
pains,” a phenomenon believed to be the result of the natural
growth process. Now it’s known that joint pain, stiffness and
swelling in or around the joint may be early signs of a serious,
inflammatory rheumatic disease.
“When
joint pain, swelling or stiffness occurs in one or more of your
child’s joints for at least six weeks, it’s important not to
assume these symptoms are temporary, and to get a proper diagnosis
from a pediatric arthritis specialist,” says Arthritis Foundation
Vice President of Programs, Jazzmin McKay. “Early medical treatment
of juvenile arthritis can prevent serious, permanent damage to your
child’s joints and enable her to live an active, full childhood.”
Contrary
to general belief, infants, children and teenagers can get arthritis.
Approximately 300,000 children are affected by juvenile arthritis.
While there is no known cure, there has never been a more optimistic
outlook for children with juvenile arthritis. Advances in research
have produced new treatments that moderate and even stop the effects
of juvenile arthritis, preventing significant disability in later
years.
In
a continued effort to reduce the heavy burden of juvenile arthritis,
disability and cost of this chronic disease, the Arthritis Foundation
is leading the way to conquer this disease through increasing:
Awareness
and support
- Juvenile Arthritis Conference –children with arthritis, caregivers, doctors and researchers from across the nation who will convene in Keystone, CO, for the Arthritis Foundation National Juvenile Arthritis Conference, held July 3-6 in conjunction with Juvenile Arthritis Awareness Month. Approximately 1,000 attendees will have the opportunity to network with those who share similar challenges and learn of the latest advances in juvenile arthritis research and care. Conference participants will also celebrate the significant advances in juvenile arthritis medication, awareness and treatments since the conference’s founding in Keystone in 1984.
- Local JA Camps and Family days – Camps and Fun Days happen throughout the Heartland Region. Check www.arthritis.org to find a local JA Program.
- Advocacy – Eleven states do not have a single specialist to treat children with juvenile arthritis. Arthritis advocates speak out for federal support to train more pediatric rheumatologists and for more research funding to help children with all forms of juvenile arthritis.
Research
- Advancing the Quality of Life for Children with Arthritis – For more than 60 years, the Arthritis Foundation has been a leader in advancing treatments and a cure for juvenile arthritis. Currently, the Arthritis Foundation funds researchers working in the field of juvenile arthritis, totaling a commitment of more than $1.1 million in 2014. These researchers are investigating a wide range of topics, from how environmental and genomic factors might play a role in triggering juvenile arthritis, to collecting data and evaluating the efficacy of standardized treatment plans, to the development and testing of a smart phone app to help children cope with pain. The Arthritis Foundation also is proud to provide $2.4 million in grant money to support the Childhood Arthritis & Rheumatology Research Alliance (CARRA), a national organization of pediatric rheumatologists who have joined together to answer critical research questions.
- Juvenile Arthritis Registry – Efforts to track drug side effects and establish treatment benchmarks through a registry aim to benefit future juvenile arthritis treatments.
More
information on juvenile arthritis and resources for families is
available on the Arthritis Foundation website at
http://www.arthritis.org/juvenile-arthritis.php.
About
the Arthritis Foundation
Striking
one in every five adults and 300,000 children, arthritis is the
nation’s leading cause of disability. The Arthritis Foundation
(www.arthritis.org) is
committed to raising awareness and reducing the unacceptable impact
of this serious and painful disease, which can severely damage joints
and rob people of living life to its fullest. The Foundation funds
life-changing research that has restored mobility in patients for
more than six decades; fights for health care policies that improve
the lives of the millions who live with arthritis; and partners with
families to provide empowering programs and information.
