Earlier we thought we had lost our baby, we still worry every second that this could happen.
At this point we will not be sharing pictures of her. Remington's journey is to bring awareness to others about the joy and pain of having a child with a congenital heart defect.
Doctors performed CPR for over an hour and they are running tests to see how much damage was caused to her brain and other organs.
She is on life support and will be for weeks if not months until her next surgery later this summer.
Everything is very difficult right now and we ask that you keep Remi in your thoughts and prayers.
