Wednesday, March 22, 2017

Update on Baby Remington Craft 3/22/17

Today is Remi's Great Grandpappy's birthday. When she had her cardiac arrest, he and great grandma Freddie packed up and headed back to Missouri to come meet her for the 1st time. 😊

Today Remi is stable. They stopped her paralytic yesterday morning in order to monitor her ST wave after her  cath/ballooning procedure the other day. She will likely require an additional open heart surgery in a week or two to correct the issue with her DKS. (She will still need her other two surgeries to treat her HLHS).

Her left leg has a possible clot and isn't getting as much blood flow as it should, so they had to up her dose of anticoagulant. But this puts her brain at risk for another bleed, and if that happens it would effect her getting the surgery she will need.

Her kidneys are getting better... there is less blood and more of the gold urine color, so that is amazing!

Also, Remi has started to open her eyes today and every so often she will twitch her right arm.






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